Wednesday, July 30, 2014

"N. O. N. E. [(The) Narcolepsy Or Nothing Experiment]" = Begun 7-29=2014 @ 4:37 AM

OK; I know I haven't been blogging as much lately as I once did, & I'm really quite sorry about that. But before I really get this one going, & fill you in on what I'm doing & why, I've got one question for you to think about; A question that has to deal with your own life, specifically, more than mine...

WHAT HAVE YOU LEARNED?!

Don't go off answering that one too fast now... Think about what you've really learned, not from me or anything I've ever written or said, but from/in your life. If you really take the time & think it through, I'll bet the answer isn't as long at the end as it is initially.

Let me explain what I mean...

About 8 hours ago, I was sitting in a different room of this apartment, getting ready to watch the Monday-night wrestling show with my Dad. (We've done that a lot.) Before "Raw", the USA Network often shows "NCIS". That night was no different, & this episode ended with scenes featuring Mark Harmon & Charles Durning... Or was it Brian Dennehy?

I know it really doesn't make a difference in this case, but I asked myself the same question aloud at the time. I IDed the actor as "Charles Durning", & Dad confirmed it. I said, "He's good," & Dad didn't really react. I then asked aloud, "Or is it Brian Dennehy?", telling Dad I find myself getting them confused occasionally, but that it didn't really matter, because I thought both were good. (This then brought me reminders to read my paperback copies of "Iceman Cometh", & then "Glass Menagerie", after which I mumbled awhile at a volume even I couldn't understand.)

Back to the question... On the same Network, I used to watch a show I loved called "Psych". One of the main characters was named "Gus", played by Dule Hill. One thing I recall about him was a "pick-up routine" he had starting with something like, "Did you hear about Pluto?". I only mention that because one of the things I learned in school was the names of all the planets, which at the time, included Pluto. I graduated less than 2 decades ago, & that's no longer the case. Even so, I often find myself wondering if Pluto won't be re-classified as a planet later in my life, or a brand-new planet will be added to the list.

If I'm being honest (which I largely aim to do online), I really am worried about that, but not so much for me; I'm more worried for my sister's kids. I have 2 nephews & a niece. My older nephew is "going through grades like gangbusters", as I've come to say it. It really means one-per-year like most should, but regardless... Who's to say he hasn't already learned something that will change before he graduates?!

That, everyone, is an honest explanation of why I'm up typing this blog on my computer at a few minutes to 5 AM. Not for anyone in my family, or for the intelligent life that may be on any (past, present, or future) planets... But because of my brain.

I mean specifically my brain; Not what I know, or used to know (like that old Gotye song), or what I think I know (or even know I think), but my brain. As someone used to say (I thought it was Colin on "Whose Line...?", & Google now seems to back me up), "For as long as I can remember, I've had memories." I honestly don't remember being told it, but going back long before time I can remember events from, I've gone to people I've simply referred to as "my neuro- dudes". To the best of my knowledge, that's probably gonna be seen by some as disrespectful, as they were all licensed doctors. But it's not (like some old documents from this country) negating the time I saw women, as in this area, I don't (didn’t; been reminded & corrected in the says since first draft) recall that there have been any females.

Anyway, put "back to basics", I've had hydrocephalus, & been shunted. (I believed one set of facts for 20 years, but Google & WebMD "pulled a Pluto" on those some half-dozen years ago.) About 3 years ago, I started having seizures. My neuro- guy of the time (I've seen a mix of "neurologists" & "neurosurgeons", & I believe he's solely the latter) literally sent me to his brother. (They are genetically brothers, I believe literally using the exact-same rooms at varying times in the same office.) I went through a few supposed anti-seizure meds (felt a bit like free samples I used to get at the grocery store), but have been taking the same one regularly for quite some time now, & went most of that with little-to-no seizure-like activity.

Then came this month. This month, I continue to take all my medications. Regardless, I have what seem to me (the only one living this life, & the only one living in this body, which makes me feel like my perspective should be the main one relied-upon if not the only one that matters) to be multiple seizures a day. In addition, I have what I literally feel (& other relatives have confirmed) is a new bump on my head a bit below my current "shunt"... It hurts literally 24-7.

I am planning to call.... I guess it would be "later today" to get the soonest-possible appointment with my current neurosurgeon. (I've been telling him basically since I met him the shunt is "malfunctioning", if in fact it's "functioning" at all. This particular surgeon refused to operate unless I took some sort of anti-seizure medication. I have literally 2 guesses what his response will be when I tell him I take it & still have multiple seizures a day; One is taking the blame, the other is finding some way to still blame it on me. I'm hoping he'll realize only putting the blame/the necessity of action on himself will allow me to live until my next scheduled appointment.) (Another Update: Did this Wednesday.)

Regardless, as much I was in the process of typing a blog about it earlier this same week, I'm really having no trouble sleeping lately. (A questionnaire my general doctor has patients fill-out every visit truly asks, "Have you often recently had trouble being unable to sleep... Or sleeping too much?". Last week, I chose, "Yes," hoping this man who had taken so much more schooling than me would realize asking the question that way taught him nothing regardless of my answer.) Actually, as my being VERY awake & active (& having just finished watching a DVD) will attest to, I have times of sleeping amazingly, & also times I could walk for miles while proverbially chewing gum without trouble.

The simple fact is I have chosen not to... Do much of anything. My sister brought all 3 kids here Saturday, & I intentionally stayed away. Mom offered to pick me up for our weekly family Lunch the next day, & I again rejected the offer. My older nephew is amid soccer practices, & while I made much of his recent sport season (where they won the Title, as proven by a picture on my cell-phone including him, a trophy, & me), I'm not sure I'll make much of the soccer season. (Yet another update: Found myself joining Mom in going to his practice Wednesday afternoon.)

I have said since quite near the day he was born I am "addicted" to my nephew. My younger nephew literally grabs my leg at every weekly Lunch, to the point I consider ordering 2 of everything in case I drop 1 when he attaches himself. My niece, meanwhile, has developed a running bit of "always has a smile for" her Uncle. It is (ironically, you may say) precisely that reason I am avoiding them.

I have had hydrocephalus for literally 3 decades, & been told I was "Type 1" Diabetic for a dozen years. To the best of my knowledge, neither is curable, & either could potentially, eventually (almost alliterative) be fatal. Therefore, I am aiming to be awake & active in some form as much as I can, simultaneously to not waste a moment, as well as to not miss it if we have an eclipse or something I might be able to view if awake. However, I am simultaneously trying to avoid seeing (or, more-accurately, being seen by) my younger relatives. In much the same way Joni Mitchell (& later Adam Duritz) sang, "You don't know what you've got 'til it's gone", I am assuming (based on my own "life experience") that should whatever's worsened recently take me away, they'll get over it easier if it'd been a long time since they'd seen me while/even-though I was alive.

Sunday, July 13, 2014

Am I A Pod- Person??

“Women That Fart”.

…OK; If that didn’t offend you, I find it safe to say that nothing else I write in this blog will…

Anyhow, I didn’t just mention that because the idea of women farting kind of makes me laugh. (No; Not the girls like I did plays or graduated school with, but the more-sophisticated types that go to art galleries or operas for fun, constantly refer to themselves as “women”, & often insist you do the same.) I also did it because thinking of it briefly this morning reminded me of that scene in “Jay & Silent Bob Strike Back”…

OK; Searching YouTube briefly got me nothing, so let me explain to those of you who haven’t seen it: In the film, “Jay” & “Silent Bob” (the character created-&-played by the film’s writer/director, Kevin Smith) are on their way across the country (see the movie if you want to know why). At this point, they are in a van in which they’ve joined one guy & a group of girls. (I’d explain why these people are on their trip, but if you ever plan to see the film, it’s a decent-sized spoiler.) Eventually, they get into a conversation/argument about whether or not females flatulate.

Anyhow, this brings me kind of circular in the subject of this blog, as it was partially-inspired by that scene, & I saw Kevin Smith this morning on a commercial on IFC. I don’t recall what show it was for, or (naturally, then) if I’ve ever watched that show.

Back on my planned subject, I only saw that ad because it was played during a show titled, “Maron”. This was my first & only (thus far, but probably not for long) time watching the show. For those of you unaware, it stars writer/actor/comic Marc Maron, playing a semi-fictionalized version of himself.

I have watched him for years when he was a guest on talk shows hosted by Conan O’Brien (back before the mess at NBC, who would probably love to have either of them host a talk show there now). For that reason, I watched him a few weeks ago when he was a guest on Conan’s TBS show. One of the things he was “plugging” was his TV show.

Another thing he discussed was his “podcast”, titled (in whole or in part), “WTF”. I am well-aware what it probably stands for in that case; However, if you read my previous blog, you’ll see I often edit myself for content (like movies shown on basic cable, even after Midnight)… See how I get the circle?!

Anyhow, the episode they aired today was one entitled, “Radio Cowboy”. Having never seen the show before, the onscreen description of this one sounded like something I might be very-much interested in: Marc (playing a podcast-host as he truly is) spends time on a radio morning show (like some he used to host or appear on in both his real & fictional lives), & comes to believe radio is dead & podcasts are the future. Soon, however, he finds & tries to help (“…help future-ize?”… “…help anachronize?”... Something like that) an old radio host.

Back off-screen, I’m sitting here (in my room & then the living room), watching the show. Meanwhile, in the back of my mind, a small part of it is thinking about my future. (I still claim to “live improv”, & believe I do so honestly, having never believed to this second the proper definition of the word/term meaning doing anything at all with no thought whatsoever.) I sit in this apartment a few hours a day. The entire time I do so, I have maybe a half-dozen “short stories” ready for publishing. (Some have even literally been submitted to publishers.) I also have an entirely-original, clean-enough-for-all-audiences (from my 6-year-old nephew to my father’s 90-plus-year-old Aunt & all in-between) musical play which is (what I call) “technically complete”. I am more than happy to take a writing job at the local paper, who prove they need me simply by the number of mistakes in one edition (& have printed opinion-pieces & the like I’ve submitted many times in the past, even E-mailing me to ask for more specifically from me on specific subjects). I am/would-be also “more than happy” to talk about anything on any local TV station (I E-mailed one & talked to an employee on the phone about possible programming), & would only “shy away from” radio due to the fact my name automatically calls-up for many my connection to my father, who has done his share (as well as dozens-of-others’ share) of work on the medium.

Anyhow, I then (at the end of the show) briefly hopped online to mention on Twitter that I had watched-&-enjoyed it. I hopped back offline (wanting to be ready to leave soon, the trip honestly being the only reason I had wanted to wake up at the time the episode began), & thought some more. I thought mainly about myself (I’m an egomaniac to a point, but if you knew a lot about me, you wouldn’t blame me), & (again) my own future. More-specifically, I thought about the chances of hosting a podcast or something myself.

I would have some definite problems, the first being I don’t own a microphone. (It looks on the show as if podcasts need at least two.) We used to have a TON in the house when Dad lived with us, & I bet he still has a bunch of them I could use simply by asking. The problem that brings me is the guests to invite on my podcast… This is where the other problem actually helps; My first plan to “fix” it was to do the podcast in some sort of non-audio style, leaving me a wide choice of guests, & I have a list I could contact through “tweets”, E-mails, phone calls (sounds sort of “Cro-Magnon” now; Doesn’t it?), text-messages, & the like.

Of course, if I wanted to reach out to the majority of those people as guests (I would eventually need to get most of them; I’ve long wondered how shows that get renewed for many years, as “Big Bang Theory” recently did, manage/plan how to fill that many episodes after celebrating the news), I would run into the problem of most having little-or-nothing to “plug”/discuss… However, as I believe I saw Donny Deutsch say on “The Today Show” once (paraphrasing here), “There are a lot of people with million-dollar ideas, but most lack the courage to give them a shot.” It is my belief (especially since Hollywood moves into remakes of “Spider-Man” for movies a decade after the first trilogy began, & is about to release the first of what I believe to be a third set of “Teenage Mutant Ninja Turtle” movies) that TV & film media rehash so many ideas almost-literally to death because they simply refuse to try ANY of the new ones that come along.

Seriously, let me know your thoughts on this!!! I want to know if I should go through with my new idea, which I have temporarily titled “T. I. P. P, E. R.” (Thanks to my student & staff friends at the local Kent Campus for semi-connecting me to this author & his book), as well as any thoughts about/ideas you have for it.